Wednesday, October 12, 2011
Monday, October 10, 2011
Today's Thanksgiving; a time for great food & family bonding, but I'm here blogging instead. My husband's out in Hamilton taking pictures while I do my best June Cleaver act & putter around the house wondering why, wtf? Once one's parents are dead.....family flies out the frigging window. Siblings & in-laws forget you exist. I find no enjoyment in holidays anymore. To be 10 again & avoid the mistakes I made would be a dream come true.
Saturday, October 8, 2011
Well after seeing my neurologist, Dr. Lorne Zinnman, on Oct 4th 2011. He commented; very politely on how Mestinon is not known to benefit those afflicted with SMA , but "Hey, if you 'think' it does you some good then......" (he's too soft spoken for me) I left with some doubts about it's effectiveness & decided to take him up on his suggestion of a home-study. Since there are no 60mg 'sugar-pills' sold at pharmacies that taste like mestinon, I opted to go cold turkey.
Upon awakening 10:05am (sat/oct-8-2011) I did not take my usual 60mg dose while on the bedpan. I normally did this thinking the drug would seep into me without getting used up & it'd be at its maximum potential when I got vertical. Instead of feeling 'lite' I felt 'hard', slightly stiff, heavy chested, but surprisingly physically confident. This was a short-lived feeling.
By the time I got dressed, washed face, inserted contacts, had shreddies (swallowing was notably tuffer), brushed teeth, groomed hair, applied light makeup....my biceps ached, neck too weak to stop head from returning upright when leaning forward to do teeth & makeup. Doug was urging me to take a pill. I said not yet......but the Listerine rinse changed my mind.
Doug handed me my rinse cup; a light-weight tupperware cup filled with half-lid of listerine & half-lid of water. I grabbed it; right hand, lifted to my mouth. My lips just briefly touched the cup's rim when my right wrist unlocked!
"Ang! What the fuck are you doing!" Was all I heard Doug say as the cup tipped towards me. Both of my forearms collapsed in my lap as Doug's hand retrieved the cup. Thank goodness for the towel wrapped around my neck. It absorbed the shlosh & saved my clothes.....whew!
At 13:06 I caved and took 30mg. I then went to Upper Canada Mall (picked up my wedding ring set from Peoples-got resized from 4 to 5) went & bought shoestrings from Thano, ate lunch at Casey's then took scenic walk at Fairy Lake, drove to local Shoppers to get meds, stopped at Sobey's and home by 17:20.
At 18:00hrs I took 30mg and feel content. Oridinarily I'd have had 60mg already for a 120mg day...60mg day worked surprisingly well.
Upon awakening 10:05am (sat/oct-8-2011) I did not take my usual 60mg dose while on the bedpan. I normally did this thinking the drug would seep into me without getting used up & it'd be at its maximum potential when I got vertical. Instead of feeling 'lite' I felt 'hard', slightly stiff, heavy chested, but surprisingly physically confident. This was a short-lived feeling.
By the time I got dressed, washed face, inserted contacts, had shreddies (swallowing was notably tuffer), brushed teeth, groomed hair, applied light makeup....my biceps ached, neck too weak to stop head from returning upright when leaning forward to do teeth & makeup. Doug was urging me to take a pill. I said not yet......but the Listerine rinse changed my mind.
Doug handed me my rinse cup; a light-weight tupperware cup filled with half-lid of listerine & half-lid of water. I grabbed it; right hand, lifted to my mouth. My lips just briefly touched the cup's rim when my right wrist unlocked!
"Ang! What the fuck are you doing!" Was all I heard Doug say as the cup tipped towards me. Both of my forearms collapsed in my lap as Doug's hand retrieved the cup. Thank goodness for the towel wrapped around my neck. It absorbed the shlosh & saved my clothes.....whew!
At 13:06 I caved and took 30mg. I then went to Upper Canada Mall (picked up my wedding ring set from Peoples-got resized from 4 to 5) went & bought shoestrings from Thano, ate lunch at Casey's then took scenic walk at Fairy Lake, drove to local Shoppers to get meds, stopped at Sobey's and home by 17:20.
At 18:00hrs I took 30mg and feel content. Oridinarily I'd have had 60mg already for a 120mg day...60mg day worked surprisingly well.
Thursday, October 6, 2011
OMG! I musta fallen asleep....May 2007 is 4yrs+ since I created this blog. Alot has happened since then.
1) Had a stroke 18-04-2008
2) Had 2nd stroke 30-08-2009; lost a friend too (Dianne Trottier)
3) Lost my Chihuahua, Taco 2008
4) Lost family friends aka Uncle Ron, Aunt Doreen, Momma B
5) Lost hockey buddies
6) Lost family Bill Wright Jan 2010 then my own mother Elizabeth "Bess" Bebee March 2010 leaving me & my 2 sisters orphans
Life goes on......
1) Had a stroke 18-04-2008
2) Had 2nd stroke 30-08-2009; lost a friend too (Dianne Trottier)
3) Lost my Chihuahua, Taco 2008
4) Lost family friends aka Uncle Ron, Aunt Doreen, Momma B
5) Lost hockey buddies
6) Lost family Bill Wright Jan 2010 then my own mother Elizabeth "Bess" Bebee March 2010 leaving me & my 2 sisters orphans
Life goes on......
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