Well after seeing my neurologist, Dr. Lorne Zinnman, on Oct 4th 2011. He commented; very politely on how Mestinon is not known to benefit those afflicted with SMA , but "Hey, if you 'think' it does you some good then......" (he's too soft spoken for me) I left with some doubts about it's effectiveness & decided to take him up on his suggestion of a home-study. Since there are no 60mg 'sugar-pills' sold at pharmacies that taste like mestinon, I opted to go cold turkey.

Upon awakening 10:05am (sat/oct-8-2011) I did not take my usual 60mg dose while on the bedpan. I normally did this thinking the drug would seep into me without getting used up & it'd be at its maximum potential when I got vertical. Instead of feeling 'lite' I felt 'hard', slightly stiff, heavy chested, but surprisingly physically confident. This was a short-lived feeling.

By the time I got dressed, washed face, inserted contacts, had shreddies (swallowing was notably tuffer), brushed teeth, groomed hair, applied light makeup....my biceps ached, neck too weak to stop head from returning upright when leaning forward to do teeth & makeup. Doug was urging me to take a pill. I said not yet......but the Listerine rinse changed my mind.

Doug handed me my rinse cup; a light-weight tupperware cup filled with half-lid of listerine & half-lid of water. I grabbed it; right hand, lifted to my mouth. My lips just briefly touched the cup's rim when my right wrist unlocked!

"Ang! What the fuck are you doing!" Was all I heard Doug say as the cup tipped towards me. Both of my forearms collapsed in my lap as Doug's hand retrieved the cup. Thank goodness for the towel wrapped around my neck. It absorbed the shlosh & saved my clothes.....whew!

At 13:06 I caved and took 30mg. I then went to Upper Canada Mall (picked up my wedding ring set from Peoples-got resized from 4 to 5) went & bought shoestrings from Thano, ate lunch at Casey's then took scenic walk at Fairy Lake, drove to local Shoppers to get meds, stopped at Sobey's and home by 17:20.

At 18:00hrs I took 30mg and feel content. Oridinarily I'd have had 60mg already for a 120mg day...60mg day worked surprisingly well.